Last year 46 countries joined in — making it a truly international campaign. This year’s focus is on RARE DISEASES & HEALTH INEQUALITIES. The official website is www.rarediseaseday.org. If you are a patient or patient representative and are planning an awareness-raising event, please contact your National Alliance. If you are not a patient rep you can also participate by becoming a Friend of Rare Disease Day. You only have to post the logo on your website and link your website to the rare disease day website. I. The slogan of the campaign is “RARE BUT EQUAL”. We encourage you to use it, together with the logo, banner and poster, which are available in the ‘Downloads’ section of the website.

400 EURO to organize Decide games

Get involved and ask for a grant to organize a DECIDE game on one of the Rare Diseases topics you can find on the website. Patient representatives all over Europe keep playing and deciding on neonatal screening, stem cell, orphan drug policy, cross border health care and PGD. Ecsite is offering to 10 institutions that will express their interest to organise games the opportunity to cover the basic costs for the organization of a game (400 EURO). If you are interested please contact info@ecsite.eu.